Legends:
Figure 1 : Study selection process flow diagram.
Figure 2: Improvement opportunities - a proposed chain of
initiatives based on the review of studies in the countries pointed in
the map (Jordan, India, Kenya, Lebanon, Brazil, Nigeria, Honduras,
Ethiopia, Peru) and multinational studies. Act 1: International
Partnership : Establishing partnerships with the teleconsultation of
specialists, mentoring programs, and financial aid to support the
development of local programs. Act 2: Nationally Coordinated
Programs: Implementing nationally coordinated programs for public
assistance, including centralization of care, financial aid from local
governments, and educational initiatives. Act 3: Education and
Awareness: Develop educational tools for the medical community and
general population to increase awareness of the disease, particularly
targeting populations at higher risk. Act 4: Screening Programs:Implementing screening programs focused on populations at higher risk,
while also incorporating periodic ocular health evaluation for all
children. Future considerations include the integration of smartphone
applications and algorithms to enhance screening accuracy. Act 5:
Genetic Services: Establishing cost-effective genetic screening
services to support early detection and diagnosis.
Table 1 : Summary of included studies.